The HEALTH : November 2018 | Page 31

exclusive NOVEMBER, 2018 | THE HEALTH 31 PRINCESS DINA MIRED receiving treatment, but his cancer relapsed after 18 months of chemotherapy. The family then headed to Boston where the toddler received a bone marrow transplant donated by his older sister; Shirin who was four year old then at the Dana-Farber Boston Children’s Cancer and Blood Disorders Centre. “We were fortunate to have been living in England at that time because Rakan wouldn’t have been able to get the treat- ment he needed in Jordan,” she confides as the treatment options in her homeland was scarce. “At that time, cancer was so taboo. The Al-Amal Centre (meaning hope in Arabic) was the first centre for cancer care and it was just opening. Even the word ‘cancer’ was intentionally omitted from the centre’s name. But we were fortunate to give Rakan the treatment that he needed. But what about other cancer patients? Those who didn’t have the financial means to get the treatment they needed?” she asked. Focus on caregivers and family members As a caregiver herself, Dina affirmed that caregivers need support from family and friends, as the treatment for cancer is long, time consuming with lots of ups and downs riddled with tension. “The same goes for family members. At the end of his treatment, we were in the United States and were coached on the huge effect cancer has on siblings. It’s very important for the whole family and the school to be told about how to recog- nise the suffering that siblings go through. There is now lots of research and great advice on how to talk to children and sib- lings about cancer. Speaking to children is an art in itself, but in such an important situation as a cancer diagnosis, I’d urge parents to seek advice so that they know how, when and what is age-appropriate to discuss.” Princess Dina Mired with a child with cancer at the King Hussein Cancer Foundation (KHCF). Giving children hope is HRH Princess Dina Mired with two young cancer patients in Oman. Health Dina explained that the first thing any cancer sufferer would point out to is that one starts to appreciate the little things; the ordinary acts of simple living. “I would say that this is the one bright aspect of a cancer diagnosis, one really understands that one should never take one’s health for granted and to count one’s blessings. Now, as a family, we try to have better nutrition, exercise more and smoking is certainly forbidden in our house.” Dina then emphasised that every- thing needs to be in moderation. “Certainly exercise but it doesn’t have to be extreme but regular, and we need to move more. Choosing healthy food, alcohol in moderation, certainly no smoking and try not to be too stressed as much as possible.” HIGHLIGHTS: IRON MEN: ISSUE: (HEART): Epididymitis: Pain at the back of the testicle p22 Pericarditis: An inflammation of the membrane covering the heart p12 Public health experts converge at congress for cancer care p14 – 15 07 | MONTH OF NOVEMBER, 2018 RM5.00 | PP19292/03/2018 (034850 www.revonmedia.com PULSE OF THE NATION ISSUE (CANCER): Early indicators of breast cancer The most common presentation for breast cancer is a lump. Nevertheless, they can present with other symptoms p09 EXCLUSIVE: An encounter with HRH Princess Dina Mired First Arab to be elected president of UICC, the princess speaks of her journey as a mother to a cancer survivor and her role as a global advocate for cancer control FITNESS: Working out as a couple Sarah Ariffin speaks of what got her motivated and how she works out with her husband p28 FULL STORY ON PAGE 30-31 “It is really how Malaysia will want to take ownership and utilise the wealth of knowledge of the UICC to benefi t themselves. Because we are there — we help the people who really want to help themselves.” Malaysia “Obesity as we all know as well as processed sugar is really bad and is really food for cancer. So, this is our responsibility as individuals.” Reiterating that it is not just the burden on the individual to keep healthy, she expounded that the gov- ernments need to provide a healthy environment for their citizens. “If healthy food is not as costly compared to unhealthy food, when its citizens don’t have that much money, with no places to work, no places to run, no school programmes to teach the kids, especially now with technology of course - making our kids sit down and be stationed all the time, how can we make that a lifestyle choice?” she poses. “Governments have to make tobacco- free public spaces, stop advertising for tobacco, stopping the tap for all the risk factors that bring in the patients. Yes, we call it lifestyle choices, but it is not really lifestyle choices alone. The big burden is on the government to provide and implement that.” Dina pointed out that UICC has a very strong membership base of not only credible and talented institutions, but also most impor- tantly, members who are utterly dedicated to fight for cancer control equity in the world. When asked regarding her position as the president and Malaysia, she was quick to rationalize that it is not really her plans. “It is really how Malaysia will want to take ownership and utilise the wealth of knowl- edge of the UICC to benefit themselves. Because we are there – we help the people who really want to help themselves.” “The political will has to be there. We have to reach out. At the UICC; we have so many tools, there are many programmes that you can join. But off-course, you are doing great in so many things. Nobody is perfect, somethings you could do more.” “Really, the secret is that now that you know UICC, you should apply for the City Cancer Challenge initiative and when you do that, it is going to be an opportunity not to be missed, this is when Malaysia will benefit. The country has to take ownership – otherwise we can’t do it.